Apparently at our house -30 is swimsuit season! For the last two hours my girls have been wearing their swimsuits and "riding" water slides!!! Also floating down a lazy river, and as I speak they are eating lunch in the "cabana" in their swimsuits :) I would take a picture however I would be horrified if anyone saw my mountains of unfolded laundry and dust bunnies that are taking up residence in my sitting/dinning room! Somehow the house work has become more than this Mama can keep up to! Yet here I am blogging about it and not just getting down to work! I guess I am hoping a cleaning fairy will magically appear! On brighter note the love of my life and probably my most favourite person in the whole wide world is coming home is 3 more sleeps :) In case you were wondering.....I am talking about my husband!
I just have to say we are all doing really well. Through this silly little blog I have met some amazing people! Two of which have experience in what Addison is going through. I am so thankful for their wisdom and encouragement. I have learned so much in the last couple of days and feel like we have some control over the decisions that will be made by Addison's specialist....maybe not control but information that will help with making the decisions that lay ahead of us. I have been encouraged by the fact the treatments side effects may not be as awful as our doctor and pharmacist has suggested. Yay! We will encourage the specialist to do a liver biopsy before starting treatment, and hopefully take our time in making this educated decision. I feel as if a huge weight has been lifted from our shoulders and look forward to meeting with this physician and learning more about what is to happen. So thank you to both of these ladies! One of which I spent 2 hours on the phone with today! Its amazing what a little blog and some kind people who read it can do! Its funny because I thought we had 12 or 13 people read it and my family, and I was really just keeping this up for my family so they could see pictures and funny stories about what was going on up here. Yet through it I was able to glean some amazing support and information for Addison and her treatment!
All I can say is I am thankful oh so thankful for "normal." Our normal anyways :) I think next week all I will be thinking is gee I am so glad I am doing..... instead of being in the hospital with Addison :)
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Aww. Bloggy land is SO wonderful and I'm so thrilled that you have support here. Because at the end of the day we all need support. :) No matter what. I;m so glad the weight has been lifted off your shoulders.
ReplyDeleteBtw, your girlies crack me up!!! ...floating down lazy river, I wish I was young enough to role play it, but alas I am not...so I will just have to dream it! ;)
Hugs, Jill.
It's always time for bathing suits! Maybe your girls are just trying to encourage spring to come a little faster!
ReplyDeleteSo glad you were able to connect with a couple of other mamas who know what you are going through. It is wonderful to have the BTDT advice and support!