Happy Valentine's Day!
Riley, Josh & Nate were excited to go to school and take part in the festivities.....espically Riley since this is the first year at school. Today was Nathan's first day back since breaking his leg, so hopefully he will continue feeling less pain and able to attend the rest of the week! 2.5 weeks home was a long time!
Addison had another appointment with her Pediatrician today. I had been doing alot of reading about the treatment she was starting, and it contradicted what her doctor was telling us.....so needless to say I was a little concerned about his course of action! What we have decided on is that we will see a pediatric GI doctor in Edmonton before we start treatment (if we start treatment.). Addy's pediatrician said he would be more comfortable with that since this was all new to him, and well this Mama feels alot better about that. I hate putting off this treatment, espically if it should be started right away, however I don't see why they would rush something like this espically with the side effects that are involved, when the doctor isn't really sure if its the best course of action. I feel like we have been on a roller coaster ride this last week, with all that has gone on! There is a possibilty of the specialist just holding off on this medication and watching Addison. I like the sound of that! We will be bringing her for monthly blood test to watch her Liver enzymes etc. so they can see how things are changing. Something little miss was quite miffed at me about! She howled the moment we pulled up in front of the lab today!!! Poor little squirt.
So now I guess we wait and pray, we wait to hear from the specialist about an appointment, we pray that maybe he will decide to hold off on the treatment, that there really isn't that much damage done to her liver right now or in the next 4-6 weeks while we wait for an appointment. Lets be real, what I am really praying for is that her Pediatrician at home here is WRONG!!!! And my sweet baby girl won't need this at all! That is what I am really hoping for! I can't help but feel frustrated with this doctor.....he kinda sent us into a tailspin! Why didn't he say that we needed to see a specialist and that there was a possibilty that we should start this treatment? Why did he book her in right away? Didn't he know how scary this would all be? Well I guess not! And I really shouldn't complain! He was doing what he believed was the right thing, at that time.
Thank you, thank you, thank you for your care, concern and prayer for Addison. It is amazing to see how many people love and want good things for my girl! I have to say this last week I have been thankful for the mundane.....like cooking, cleaning and doing laundry for my family! All of which you can not do from a hospital :) I am now thankful that our family only has one week in a hospital we love in Montreal not two weeks of hospital stays on our calendar right now. I am thankful for the wait! Weird I never thought I would ever say that! I will of course keep updating you all on what is going on with this once we know.
Thank God, Kim! Praying that appointments comes quickly...
ReplyDeleteThank you for keeping us updated. Hoping to hear good news from the specialist in the next little while.
ReplyDeleteThat is good news and hopefully the GI specialist will have some better options.
ReplyDeletePraying for a great outcome!
I can't believe you've been thrown onto this rollercoaster ride.
ReplyDeleteI'm praying that the GI will give you answers and assure you, and that little Addy will get the best course of treatment, if necessary.
Goodness, I can't imagine what you are going through right now. I'm sure it helps a little that you now feel she isn't getting thrown into a treatment that may not even have been the best, and with side effects to boot. Goodness.
Praying for your little Addy. And for Nathan too. And for you, as you deal with all that life is throwing you right now.
Huge hugs. Jill. xx