As I sit here and contemplate how I am going to write this post, I am looking for pictures to add and chuckling at all the comical faces my sweet girls can make.
Addison and I have returned home from our last doctors appointment, a little stunned and overwhelmed. We have just had word that her body is attacking her poor little liver.....which means in two weeks from now Addison will be admitted to the hospital to start 4 - 6 months worth of anti viral injections. She will need to stay in the hospital for the first week of injections to make sure she has no major adverse reactions to the medication. And then we will be able to do the injections as out patients (hopefully) and come home.
Our pharmacist has warned us this medication can cause hair loss, nausea, lack of appetite, lowered immune system, aggressive behaviour, and extreme exhaustion, during the beginning of the treatment, however (hopefully) her symptoms will improve as the treatment progresses. We have been warned that the treatment is extremely expensive, so we are praying she can receive treatment as an out patient so that the injections are covered. I know the Lord will provide a way for us to cover these treatments, yet to say its not a concern, would be an understatement!
Addison's pediatrician has told us that if we can't get control of this she could be looking at a liver transplant in the next couple years! That gave me a bit of a jolt, and I am not sure if I heard what he said after that, for a few minutes!
To say that I am shocked is an understatement! It was on our radar as an off chance that this could be an issue ( like 5% chance) from the tests the orphanage was testing her for. As I sit and type this I have moments of peace and trust that the Lord will carry Addison and our family through this, and then moments of such sorrow and anxiety.
Howard is still away working right now.....we have seen him for one day in the last 2o days. Our whole family misses him immensely! We are hoping that he will take leave and come home for that week Miss Addy is in hospital, so one of us can be with our other kids, however if the injection is not covered, he will remain away so we can swing it. Also Nathan broke his femur 10 days ago and hasn't been able to go to school since it has happened. So to say that I feel like we are going through a time of testing, would be a huge understatement!
In amongst this gloomy post, I must say....Our God is good, ALL THE TIME! He will hold us together and carry our family through this trial. I know beyond a shadow of a doubt that these trials and momentary struggles we must endure here on earth are preparing for us an eternal glory that far outweighs anything we can face on this earth! Am I weary? YES! Am I troubled? YES! but I know that God says that He uses ALL things for the good of those who loves him! And I can do all things through Christ who strengthens me!
You word is a lamp unto my feet and a light unto my path. ~ Psalms 119:105
The Lord is a good refuge in times of trouble. He cares for those who trust in him. ~Nahum1:7~
When you pass through the waters, I Will be with you; and when you pass through the rivers they will not sweep over you. When you walk through the fires you will not be burned; the flames will not set you ablaze. For I am the Lord, your God. ~Isaiah 43:1-3
Well my family, friends and bloggy friends if you believe in the power of prayer, our family would be humbled if you would lift our sweet Addison up in prayer. We are praying that this medication will heal her, that she will be 100% after this. That she will not succumb to the side effects of this medication and that she will be able to trust Howard and I as we guide, love and nurse her through this illness. Please pray for the rest of our family as well ( I think we may need it! lol!) Our other three kids will be quite concerned and I know this will be a trying time for them as well. I am hoping to have our laptop running at the hospital and will update you all, as we know things. We would like to make her stay as fun as possible. As we are only there in case she has a bad reaction, so if any of you have any ideas for entertaining a 2 year old who doesn't like t.v. Please, please, please message me in the next two weeks so we can prepare a hospital entertainment kit :)